Cystic Fibrosis Australia (CFA) is the leading consumer body for individuals in Sydney, Australia, who are living with cystic fibrosis (CF). Their main focus is on collaborative programmes, research, funding partnerships, and advocacy. CF is a recessive genetic condition that primarily affects the lungs and digestive system due to a malfunction in the exocrine system, which is responsible for producing saliva, sweat, tears, and mucus.
By supporting CFA, individuals are helping to further research, development, collaboration, and advocacy so that all Australians living with CF have representation at a national level and are heard by the government and health and community sectors. CFA leads the national research programme called the Australian Cystic Fibrosis Research Trust (ACFRT), which oversees all administration requirements and funds research into the treatment and cure of CF. It's worth noting that 100% of the funds raised or donated to the ACFRT are used to support research.
Currently, over 3,600 Australians live with CF, and there are over 3,000 gene mutations known to be associated with the condition. Despite these challenges, advances in treatment and care are improving the lives of individuals with CF, and babies born with CF can now expect to live well into adulthood. However, there is still no cure for CF, and individuals with the condition must undergo constant medical treatments and physiotherapy from birth.
CFA is committed to providing support, resources, and information on CF to individuals and their families. They have published the first four chapters of the Standards of Care for Cystic Fibrosis, with more to be added in the coming months. By visiting their website or contacting them directly, individuals can access more information, sign up for regular newsletters, and get involved in the CF community.
Cystic Fibrosis Australia respects and acknowledges the Traditional Custodians of the land on which they work, live, and gather, and they pay their respects to Elders past, present, and emerging. As a sports club in Sydney, they aim to raise awareness and vital funds for the CF community, contributing to the ongoing research and support efforts for individuals living with CF in Australia.