The Children's Tumour Foundation (CTF) is a patient advocacy and support service based in Sydney, Australia. It provides assistance to individuals and families impacted by Neurofibromatosis (NF), a group of rare genetic conditions that cause tumours to form on nerves throughout the body. NF can lead to a range of significant health issues, including deafness, blindness, physical differences, bone abnormalities, learning difficulties, chronic pain, and even cancer.
The CTF aims to create a future free from tumours by addressing immediate needs, advocating for change, and supporting research efforts. Beyond treating the physical symptoms of NF, the foundation creates opportunities for individuals and families to learn and come together in safe and supportive spaces. It also works towards making life more equitable for those living with NF by advocating for their rights and addressing issues like discrimination and stigma.
As one of Australia's leading charitable contributors to NF research, the CTF has invested millions of dollars into key projects. It conducts ongoing advocacy efforts and directly funds research initiatives, giving hope for a future free from tumours.
The foundation shares inspiring stories of individuals living with NF, such as nine-year-old Sol and 10-year-old Tom. These stories highlight the challenges they face and the support they receive from the CTF and allied health professionals. By sharing these stories, the CTF aims to raise awareness and generate support for individuals living with NF.
The CTF regularly updates its supporters with the latest news and developments through their website. It also organises events, such as the annual “Conquer NF in Colour” fun run, happening in Sydney, Melbourne, and Brisbane in November. This event is filled with vibrant colour, live music, giveaways, and more, aiming to create a fun and energetic atmosphere while raising funds and awareness for NF.
Whether you are impacted by NF, a healthcare professional seeking information, or simply looking for ways to make a difference, the Children's Tumour Foundation can provide you with the support, resources, and opportunities to get involved and help change lives.